July 1, 2022
12:32pm
Very dehydrated I think. Got some Gatorade and I'm watching the News and following Twitter.
I'm sorry if I upset you. I don't want you to worry. The ENT passed me off to the head and neck oncologist at Miami Sylvester Cancer Center (I'll be there on Wednesday because that's where Dr. Cohen is doing my test procedure of a medial branch nerve block)
But I told the nurse who called last night that the ENT made a referral to a specific doctor at Sylvester and Florez won't approve it so I'm going down there on the 14th to read them the riot act.
The ENT said even if the biopsy comes back NOT cancer he wants me to see a cancer specialist because it won't heal with the magic Mouthwash (dexamethosone, corticosteroids and lanocaine)
The steroids they gave me a t the hospital did help but I don't have any more left. Also, they gave me the steroids for my spine to reduce inflammation. They didn't know about my mouth but the ENT ordered me to go directly to the Emergency Room when he last saw me because my mouth was so bad I couldn't eat or drink fluids.
Then Dr. Cohen (pain management ~ anesthesiologist) ordered me DIRECTLY to the Emergency Room from his office and wanted to call an ambulance.
I said no and they made me sign papers that I was leaving AMA. When Dr. Cohen sees me he admits me to the hospital for a few hours to do procedures eg steroid injections and then discharges me. Last time he made me sign AMA because he thinks I have additional spinal cord damage.
You know how I feel about the Emergency Room and I had no idea they were going to admit me.
They admitted me to neurosurgery and the surgeon came to my bedside to talk to me.
REMEMBER GOOD SAM said for five months they didn't have a neurosurgeon?? Why couldn't they have done that in 2018??? They just left me in a bed, didn't change my clothes or panties once, didn't shower me or clean my body and I couldn't do it because my hands didn't work at all.
No one cleaned / bathed me at all until you sent Elaine to me and she got a healthcare aide to go to Good Sam and she gave me a shower and washed my hair and got the knots out.
Steve and Elaine didn't even recognize me when they came back to see me a few days later
When I was at Good Sam last month while you were in Vienna, they wouldn't let me shower or bring me washcloths to or cleanser. They didn't clean / bathe me and they cut off ALL Endocrinology (thyroid meds- dx para hyper thyroidism or hyper parathyroidism ?? epilepsy meds & Pottash's meds and didn't give me an iron, magnesium or potassium infusion which is what is generally given for dehydration rhabdomyolisis and given the acute state of my anemia that setting off alarms for Rheumatology and finally my PCP noticed. However they all wanna send me to a hematology oncologist. Good Sam picked up nothing.
It was terribly traumatic and when I complained to the nurse that I had allergic reaction (my eyes swelled shut) and I had an allergy band on and he tried to give me the same medication FiVE TIMES!!
They also kept giving me morphine which I did not want. They injected it and hurt terribly and burned going in because they did it too fast and didn't care when I said it hurt.
They just didn't care. It was TERRIFYING because they kept lying to me and when I questioned and started taking photographs of the meds, nurse Chris Jovenes alibi or witness I'm not really sure which one; said to me "you can take as many photos as you want. I keep a lawyer on standby."
WHAT KIND OF A NURSE KEEPS A LAWYER ON STANDBY?
And what in the world would prompt him to say that to a patient in his care??
Joevine said (with Chris in the room) "I do not consent to any photographs or notes of any kind, you may not use your phone and she took it out of my hands and that go over well.
I had another one in my purse.
HORRIFYING. I asked for an Ativan at 7:30 pm and the totally incompetent horrible Nurse named Joevine didn't bring it to me until 5:30am.
The next day I had a seizure and they couldn't give me Ativan because Joevine fucked up the schedule.
I didn't complain at first but they kept giving me the wrong meds even though I updated with a nurse at 1pm on Monday when I was admitted. They tried giving me high dose Of gabapentn, adddfall, Minipress , and no Effexor, Lyrica, Vyvanse or and gave me ?? mg of Cymbalta and then gave me 4 tablets on Tuesday NIGHT And told me it was Effexor.
It's possible that it was 475 mg affects or however it was not extended released and I could tell because it wasn't a capsule.
now they refuse to allow me to examine the medication before I took it. And when I ask specific questions about the medication that they were giving me since the works played a few I should not have been given they told they took them away and OK then you can't have any.
So it was all or none. Now this is consistently a problem at good Sam and I think you've known this good Sam tried to give me Librium once I asked them what it what are you gonna be Librium for I don't bounce equilibrium I thought maybe they thought it was lithium as someone put that on my truck but no it was Librium which is for alcoholics. I told the nurse I was not an alcoholic, and there was a physical therapist in the room with me when I doth protest too much.
I got up and looked at the chart and it was some patient down the hall.
As these kinds of mistakes you may say or a minor however they add up overtime and they create extreme distress and caused a break in my treatment & recovery .
The entire time I was at good Sam I saw I don't know physical therapist, podiatrist for my feet or an oral surgeon for my mouth.
they claim they do not have a record of my primary care provider which is marked clearly on my insurance card.
They gave me absolutely no discharge instructions.
which is my most important medication. Withdrawal form Effexor is very serious and Dr. Pottash knows that if you stop taking Ativan suddenly it can cause seizures.
They we fed reckless and horrible. When I told the night nurse Chris (Joevines partner in crude ~ they came in together to bully me and STILL gave me the wrong meds. I wrote dow n like I always do so I can report o Dr. Pottash and neurology because they like me and appreciate my diligence.
They kept me hooked to an IV that they turned off but the tubes kept me chained to the so I couldn't go to the bathroom.
They did not answer calls for bathroom up to an hour and did not putt pads on my bed for accidents.
IMPORTANT!! This is why I went to the ER. I wet my bed a few times and then I couldn't take fluids and I couldn't pee. These are all serious symptoms for neurology so they sent me to ER.
The ER was fine and I zoomed with Dr. Pottash and my neurologist Dr. Arizala-Martinez.
They made me so sick and I was only there a few days. And completely triggered my PTSD all over again.
Trying to work through it but I don't have EMDR therapist anymore.
*unfuniished medical document contemporaneous notes & hospital records to be added.
PS Humana denied all patient for Good Sam.
Fun. Good time.
/ed
On Jul 2, 2022, at 9:57 AM, Marc Durant <MDurant@durantlaw.com> wrote:
Listen to some music and relax. Whatever will be, will be. If you have no control over it, there's no point in worrying about things you can't control.
-----Original Message-----
From: e
Sent: Saturday, July 2, 2022 9:21 AM
To: Marc
Subject: Biopsy Referrals
Thus is a fascinating time to be alive but I don't know how much more I can take
I assume the head and neck oncologist will tell me how long I have. Or the hematology oncologist. No one is telling me how long I have. And I'm so tired going from this doctor to that doctor.
I'm ready to let go and say my goodbyes. I just don't know how much time I have left to do do that.
I can't handle fighting for treatment. Florez called me at 7 pm last night to see if I went to the hematology oncologist.
Um, no. I can't schedule an appointment because you dkdnt send my medical records.
I asked them AGAIN for a foot surgeon and a dermatologist to do a biopsy on my foot.
The complete idiot said I can't handle it.
It's too much for me.
/ed
/ed
Elyssa Durant Research and Policy Analyst
