They are actually getting much worse but when I saw my primary care provider yesterday, she fully understood why I didn't want to go to the hospital down the street.
We discussed it. Yesterday was actually ONE YEAR TO THE DAY I was discharged from Miami.
It's really awful that Karen would send Darryll over the exact same time I had my one year follow up and the doctors feel that the construction and stress are directly correlated to the disruption of my regimented schedule and routine.
I know that it's October 2, 2021 5:30am EST
Missy and I spent a lot of time talking about using colors and lights to rewire my brain but I just can't seem to find that perfect sweet spot this morning.
I can't turn my head again and I can't keep moving everything from one room to the next.
I looked at pillows and the one gram got me was very expensive.
I'm trying to minimize expenses but I'm VERY specific regarding what products I use and read ALL the labels.
I'm trying to do that raw organic thing with honey not sugar; organic vegetables 🥦 I even got my own little Sweet Basil 🌿 plant 🪴 and Missy said she will teach me how to make Marinara Sauce as she doesn't mind cooking in front of an audience.
I've had some HUGE set backs this week. The curtains fell on my iPad and changer and several things the workman installed already fell off the walls. I had to move the bed and nightstand again because the outlet short circuited.
I keep all my super secret penguin stuff on my nightstand so when I discovered this I managed to spill apple juice 🧃 on my SIM card that fell on the floor and I tripped out!!
The amazing thing is that I managed to FIND IT, and even picked it up myself!!
The SIM card is key because it's activated through FCC Broadband benefit program.
I can't seem to figure out how to apply it but my iPhone is totally bricked now. The same one I thought I lost and the iPad is turning off and on by itself.
Everything here is voice activated and the funniest past is that it recognizes MEOW and sends emails and shit.
Cleo is very very smart. And it makes perfect sense that they keep sending me CAPTCHA unable to prove I'm human!!
Cleo and I waddle around meowing at each other all night long.
OK I'm smiling again. I'm VERY tired and I nod off every few hours even if I'm eating cereal in bed.
Rose knows this and she catches me when she's here. That's why it's so important that I have my walker at all times but it doesn't quite fit with the door off the hinges.
They do NOT let you take a walker or wheelchair in ambulance to hospital and that is one of the primary reasons I don't want to go.
They kick me out all the time and send me home 🏠 with ibuprofen and tell me to call an Uber!!!
THAT'S RiDICULOUS
Ok I have to go now. My feet are burning up and I should wrap them.
Dr. Santana drew lines on my calves and said if the swelling goes up to that point OR if I develop a fever I have to go to shitty ER.
It's the same thing I had last time. I've known that forever but insurance doesn't care if I lose my feet.
The only thing they care about is that I keep breathing.
Love you,
Bye
Elyssa Durant
Research and Policy Analyst
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